Wednesday, 8 October 2014

Trials and tribulations.

So the last month i have been doing a trial for a anti-inflamatry drug for my lungs. While i was doing the trial i had to stay in hospital for abit , which was a blessing really because i was suffering from really bad migraines, after ct scans i have been told i have sinusitis. They said my sinuses are really blocked but because i was on the trial there wasn't much i could do at that point. They gave me sinus rinse and a nasal spray which has helped the headaches abit. But i am hopefully going to have surgery   so they can unblock it all.

I thought having to stay in hospital for abit would be good for me , as i haven't had ivs in about 5 years now (and never staying in the adult side since transitioning) i was positive it would make me less nervous if i did have to go in for ivs soon. But if anything i think has made me more nervous , since my last ivs i have had my port removed and my veins are so so terrible. This time while i was in hospital they had to take bloods a lot so they put a canular in , but because my veins are so shocking they only lasted a few hours and then stopped working. So i have been told if i need ivs again in the near future I'm most likely going to have a port re fitted. I was climbing the walls this time in hospital and i was only in for three days , then home for a few days then back. I just kept thinking how do my friends do 2-3 weeks.

Because of the trial i have to be using two forms of contraception for up to three months after the end of the trial. I have also been under the gyene for awhile. 

We have stated the ball rolling on the whole family planning. We are not currently wanting a child at the moment , as we both still live at home and we would hope to be married ,but being married isn't the most important thing to me. I feel like i can get married at any time. I feel like if my health worsens the most important thing that can be taken away from me is having a child. Don't get me wrong i really want to get married too, but i feel like i do not need a ring to know jack is going to stay around for along time. Jack has been tested for the cf gene and luckly we have been told he isn't a carrier , so that is one thing ticked off the list and another thing off my mind. At the moment my cycle is all messed up and we are seeing if after a year of being off the pill .... if finally my periods are finally sorting them selfs out as i have polocyctic ovaries. So we both know that getting pregnant is not going to be easy but it will be worth it. I will write future posts on how that is all going.

for now I'm going to say see ya x

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